Wednesday
Consultant visit this morning and Colin is making very good progress. I hesitate to say he is doing great because anything can change in a blink of an eye.
* Recently dropped taking 7 doses of tablets
* Tomorrow to start titrating down immuno suppressants. Will be finished in 3 months if all goes to plan.
* Well and fit, no temperatures or rashes or diarrhea.
* Recent changes in blood test are not a worry says specialist
* Food rules: we have relaxed a bit
* Cleaning rules: I have relaxed a bit (kind of couldn't keep it up) Neutrophils are good anyway.
* Removal of central line (Groshon) from his chest hopefully next week
* Hospital visits down to fortnightly when Groshon is removed. Get our life back.
* Still no travel overseas is on the cards till June 2016. Dependent on health
Problem with going off immuno suppressants is that there is a chance of getting Graft versus Host disease. As this states it is kind of a fight between the donor cells and Colin's own bone marrow cells that are left. If it goes into a full blown fisticuffs then we have a problem. It is more likely to happen at this stage!
Colin has cut out his afternoon sleep. He is growing hair. He is walking 2 km every fine day. He is doing office work, dishes and jobs around the house. He is stronger and well. He is enjoying retirement. He is eating well and maintaining his weight.
Pray:
That it all stays on the up and up. That the transplant will continue to work for a LONG time.
We just don't know how long it will continue.
Domain greenhouse
Sandra D and me on our walk
Tuesday a visit and uke jam with Sandra
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