Back on the rollercoaster, that I didnt want to ride

Love is..... Riding the roller-coaster together

Thursday
A persistent visitor insisted on coming at 9 am after ringing and waking us.  When he said he had campylobacter and a bladder infection I wasn't impressed.
We declined a hand shake. Though it was good to catch up with him.  Colin has to be vigilant with exposure to germs now.

Friday
Our last day at home before chemo tomorrow. He may be able to return home during the day between doses.  Past experience doesnt support that but we will see.  Nurses who have been brilliant had charted extra anti nausea.
Have had some time out today for myself and then shopped for food over the weekend.
I feel strong right now.  Sometimes I am a mess as I think about the future. What you see on the outside belies what is inside.  Not a moment goes by without the diagnosis ruling our lives.  It is all encompassing and encapsulates us.  Life after 19 January is a different world.
We are both starting this stage of BMT in better health and strength of mind

Visiting
Visiting  for relatives and close friends only.
We may not be at hospital so ring first.  You may visit me if Colin is not wanting visitors but the restrictions  may put you off
-shower and clean clothes before you visit
-no one with cold,  flu or infections or exposure to childhood diseases or recent vaccinations
-dont come if you feel unwell
-only 2 people at one time.  Transplant is exhausting.
-no flowers or plants
-if you have been gardening don't come
-on entering the ward you must wash and sanitize hands
-don't  touch Colin

Colin will have no defense mechanism as the toxic chemicals will obliterate his bone marrow. This makes him susceptible to catching anything.
An infection can kill him

SATURDAY Chemo day
Minus-6
Countdown to day 0 - BMT day
All went well for a short dose of fludarobine this morning and we are home by 1pm.  All going well we are home to stay tonight
Back to hospital for the next 2 days for  morning and evening chemo doses.  Yayy we can go home during the day and will stay overnight from tomorrow
Lovely to come home for a break.

Blessings
Thanks so much to everyone for
-good wishes /chats /a listening ear/nourishing food /kind texts /thoughtful emails /regular phone calls /yummy biscuits
I cant get back to you all personally but am really thankful for the support.  It makes us feel like we are not alone.

All plugged in

His hotel room for a month.  Only single ply toilet paper though.