Love is.... An uncomplaining husband
Monday
Day 10
I hear the doors slamming one by one as the breakfast is being delivered to the patients. Its only porridge. Then menu delivery and weigh in before day starts and bloods taken then he is hooked up to his 2 x daily cyclosporin immune supressant. He will continue this drug for at least 3 months. If Colin can't swallow then he has to have tube feeding. I have had a better nights sleep as was tired and slept through most of the night disturbances including the incessant beeping of the call buttons. This is because patients are hooked to their drips and when they run out they must call the nurse to attend. One drip needs about 3 calls over 30 minutes due to flushing lines etc. Colin often silences the machine as it is annoying if you are watching a program.
One nurse said Colin looked like a visitor except for his feeding tube as he looks so well. I am hoping it continues.
His throat is sore and they crush the tablets in a coffee grinder and give him via the NG tube. Some will be given IV.
When the meds kick in he is able to manage breakfast and a soggy French toast, not crusts though.
Last dose of methotrexate tomorrow which is to prevent Graft versus Host disease. He will go down hill again from that med. Lets see what happens next.
Tuesday Day 11
Colin is tired today and the sore throat is persistent and due to worsen. He is still eating soft foods and only slowly losing weight. His neutrophils have dropped below 1 so have to take care incase of infection. I am gloving up and doing extra cleaning. Probably will need tube feeding by tomorrow but i will keep trying to make food for him. Otherwise he is in good spirits and appears well. Ducked down to Newmarket again to get supplies for won tons which I'm so pleased he ate. Have to be extra careful because there are so many restrictions to the food. All the nurses say he is doing really well. Friend David has had a really sore swollen mouth and not eaten for 3 days. I am trying to avoid that for Colin. Unfortunately an ulcer has started on Colin's lip so i hope it isnt worse tomorrow. I had to come home to get some sleep, do the washing and go with Cameron to an appointment. Great i can wash my hair, have a decent shower and change my clothes. Another day tomorrow.
Wednesday
Talk about all go to custard. Colin vomited up his breakfast and a small lunch. Very nauseous today and nothing is able to be kept down. Let us hope tomorrow is a better day. Anne visited but he slept through it and Kevin Lee dropped in to say hello. Yesterday Colin's hair started falling out and today it is all over the pillow.
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