Love is.... Feeling funny when he went off on his own
Driving in my car
Wednesday
Colin drove off by himself to a medical meeting today. He really wants to keep up with his education. Nice to see he got in the car and drove on his own. First time. Showing how far he has come with his independence. Only in February he could not feed himself or toilet himself. Couldn't walk with out support and was asleep most of the day and unable to speak much. That time seems like another world. We can't believe it happened to him.
Now we are waiting to go back. I am praying it won't be so bad this time but we have heard the other stories. It is going to be really really tough going.
As our friends from the ward said "if you read the information you wouldn't do transplant"
I am wondering how long this blog will continue. What will be the time to stop? Don't worry my avid readers, there is a long way for us to go with all the treatment ahead. Thanks for all the positive support and good wishes from you all for the transplant. The emails really help to carry on.
Life at the moment seems so normal. I wish we could bottle it and put it on Hold.
Thursday
Clinic day and all is well. Blood tests are fine. The chemistry results are better as his liver function is improving.
We trip around after clinic. Lunch at Selera and off to look at a wedding venue for Nick. WE have to get out and about as much as we can as I have no idea how long Colin will be admitted for. We run into another neighbour Sue, at clinic with her reoccurring cancer . Her boyfriend is also attending the clinic. Friend Steve is also there. He is so disappointed that he has no donor match from 4 siblings as they can't get a donor of the registry due to his weakened health. We feel so blessed. They both ask me about Salvestrol. I hope it can help them. Sue said the doctors don't mind her taking it. It doesn't interfere with treatment but enhances chemo.
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